FEATHERS Play Privacy Policy

Data collected by the application:

Email: Access to the person’s primary email address

Public Profile: Access to a person’s basic information, including first name, last name, profile picture, gender and age range

User Friends: Access to a person’s list of friends that also use the app.

User Games Activity: Access to a person’s game activity (scores, achievements) by any game the person has played.

User Groups: Access to a person’s groups.

 

Privacy Policy:

According to the UBC Policy on Scholarly Integrity, all data collected by this application, will only be used for the purposes of analysis and then destroyed after 5 years of the end of this study. All collected data will be kept in a secure, locked room at UBC for five years after the end of this study.  We will use the collected data only in relation to this particular study. Information from these sessions will be used to design the robot-based social-media and game interface.  Also, manuscripts based on the findings will be submitted to scientific journals for publication.  In the event that quotes from a discussion are used, there will be no information included that could identify the speaker or the client, and you will not be identifiable in any report.

Your confidentiality will be respected. However, research records and health or other source records identifying you may be inspected in the presence of the Investigator or his or her designate by representatives of UBC Clinical Research Ethics Board for the purpose of monitoring the research. No information or records that disclose your identity will be published without your consent, nor will any information or records that disclose your identity be removed or released without your consent unless required by law.

You will be assigned a unique study number as a subject in this study. Only this number will be used on any research-related information collected about you during the course of this study, so that your identity [i.e. your name or any other information that could identify you] as a subject in this study will be kept confidential.   Information that contains your identity will remain only with the Principal Investigator and/or designate. The list that matches your name to the unique study number that is used on your research-related information will not be removed or released without your consent unless required by law.

Your rights to privacy are legally protected by federal and provincial laws that require safeguards to insure that your privacy is respected and also give you the right of access to the information about you that has been provided to the sponsor and, if need be, an opportunity to correct any errors in this information.  Further details about these laws are available on request to your study doctor.

What if you still have some questions?

If you have any questions or desire further information about this study before or during participation, you can contact Heather Branscombe (Director, Abilities Neurological Rehabilitation) email: abilitiesrehab@gmail.com or telephone 778-880-0944, or Alec Black (Director of Shriners Gait Lab, Sunny Hill Health Centre for Children) email: ablack@cw.bc.ca or telephone 604-453-8356. You may also contact the study principal investigator, Machiel (Mike) Van der Loos at vdl@mech.ubc.ca or 604-827-4479.